I Risk My Life Everytime I Venture Out | #FitToBurst

Did the title grab your attention? No, it wasn’t clickbait. No, I’m not being dramatic and no, there isn’t another way out of this vicious cycle that I haven’t spent 14 years trying to make work to improve my situation. “ My name is Fi, I’m a 30 year old Mum of 2 little girls living in Bolton, Greater Manchester and I was born with an extremely rare, progressive muscle-wasting condition. I am totally dependant on a powerchair to mobilise, am completely non-ambulatory (unable to walk) and need help with most aspects of daily life. Including toileting. “ Maybe that … Continue reading I Risk My Life Everytime I Venture Out | #FitToBurst

Changing Places Campaign | #FitToBurst Part II | When Doctors Don’t Listen

Β (Title Image: Lady stick figure desperate for the loo, + wheelchair symbol = Changing Places toilets) This post is part of a series focusing on Changing Places, in collaboration with Muscular Dystrophy UK’s #FitToBurst Campaign. It might be helpful to read PART ONEΒ FIRST!πŸ‘ Where we left off in Part 1, I had been referred to a Urologist to discuss the ins and outs of what it will take for me to undergo unnecessary surgery for a Suprapubic Catheter (aka SPC). Fast forward 4 months to November, I was seen at Royal Bolton Hospital. Before I go into what was said … Continue reading Changing Places Campaign | #FitToBurst Part II | When Doctors Don’t Listen