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Adjusting to NIV Around My Children

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Learning to let my children see me using a ventilator on a daily basis, despite the heartbreaking worry of how they’d react. Would the machines I depend on to keep me with them longer, frighten them? And would even they still love me the same? Continue reading Adjusting to NIV Around My Children

My Journey Adjusting to NIV | 5 Years to Acceptance!

(Pictured: A 2 part title image. The first features a ventilator where the display screen instead of graphs and breath rates reads; “5 Years to Acceptance.” Next to it is a photo of me with my vent mask on with long tubing, over it is a comical SnapChat filter where it puts cartoon cat ears and nose on me on my vent) I didn’t think I’d ever be writing about myself using NIV (Non-Invasive Ventilation), never mind felt bold and at peace enough with it to pubically display a picture of me on it! This may in fact be the … Continue reading My Journey Adjusting to NIV | 5 Years to Acceptance!