A patient guide on preparing for a Suprapubic catheter surgery including: prep at home, catheter kit storage solutions, information video, post-op aftercare and developing a routine living with an indwelling catheter. Continue reading Preparing for a Suprapubic Catheter
This post is part of a mini-series that focuses on Physiotherapy for individuals with muscle-wasting condition, transitioning from children’s to adults services at age 18. I recommend you read *Part I* to gain a better insight to this topic. I left off in Part I briefly touching on the light at the end of the tunnel for many in the North of England and that is The Neuromuscular Centre! The Neuromuscular Centre is a non-profit organisation based in Winsford, Cheshire that provides a centre of excellence in Physiotherapy for young people aging out of the system with all sorts … Continue reading Physio After 18 | The Neuromuscular Centre Part II
Here in the UK on the NHS, physiotherapy for progressive muscle-wasting conditions stop once you reach age 18. The way it was told to my parents was that the NHS could no longer justify the cost of weekly/fortnightly therapy that would never better the young persons ultimately incurable condition, despite if maintain physiotherapy benefited the individual in some shape or form. Here’s my story trying to re-access this vital therapy… Continue reading Physio After 18 | Incurable muscle-wasting conditions ¦ Part I
*SENSITIVE CONTENT* I open up about the rare lifelong complications of my Spinal Fusion surgery I underwent aged 14 for severe Scoliosis. When the chronic pain began exactly, how it’s changed over the years, what my medical team and I have trialled to manage it, aswell as coming to terms with the very real likelihood I’ll live with it for the rest of my life. Continue reading My Rare Complications from Scoliosis Surgery
(Pictured: A 2 part title image. The first features a ventilator where the display screen instead of graphs and breath rates reads; “5 Years to Acceptance.” Next to it is a photo of me with my vent mask on with long tubing, over it is a comical SnapChat filter where it puts cartoon cat ears and nose on me on my vent) I didn’t think I’d ever be writing about myself using NIV (Non-Invasive Ventilation), never mind felt bold and at peace enough with it to pubically display a picture of me on it! This may in fact be the … Continue reading My Journey Adjusting to NIV | 5 Years to Acceptance!