It seemed like only yesterday I was doing a trial school run to find the best route in my powerchair, when we met Abbigail’s wonderful teachers and this photo was taken of us at a parents Stay and Play session … Continue reading Reception Round-Up | As a Disabled Parent w/ a SEND Child
It’s difficult to keep typically developing children from becoming bored and literally losing their minds on a wild, windy and wet day. Though when you have a SEN child with a visual impairment, you have to think outside the box to come up with appropriate activities that are suitable for their level of sight loss, yet aren’t too easy that they’ll get bored quickly but rather helps them build on a skill, all the while and most importantly being FUN! My eldest daughter Abbie is 5 and she was born with a genetic degenerative eye condition called Retinitis Pigmentosa (or … Continue reading Top 5 Rainy Day Activities For Visually Impaired Children
In support of the recent campaign by Laura Moore AKA Mum On A Mission to get Walt Disney World/Disneyland resorts to see the dire need of ‘Changing Places‘ toilet facilities in their parks, I wrote an open letter to Disney explaining the sad reality behind exactly why my children will Never get to experience the magic like every other kid does in their childhood. Mum On A Mission in the Media; Mum SLAMS Disney after having to change severely disabled son on toilet floor Dear Disney, My name is Fi and I’m a 29yr old Mum of two little girls … Continue reading Dear Disney | Why my children will Never experience the Magic…
Tuesday 20th February 2018 is a landmark day in the lives of people with thousands of various profound disabilities and chronic illnesses to where toileting out in public is either impossible or vastly undignified. Today could mark the day accessible … Continue reading Changing Places Campaign | How 1 Mum’s Petition is Changing Lives!
(Title Image: Childhood photo of me during Physio, standing with a walker) I don’t recall a clear cut day that either of my parents sat down to break the news to me, “Fi, I’m sorry to have to tell you this but you have a muscle disease.” I guess that’s how one would expect to be given such a revelation thanks to the movies! No, I always knew. My parents were very open about my condition. They’d told be bits and pieces (age appropriately) from since before you retain memories, mainly before age 3 I believe. There was no way … Continue reading How My Parents Told Me I Had MD