My then 2 year old daughter, fast asleep on her boppy pillow, dummy in her mouth, still grasping my hand.

5 Adaptable Bedtime Hacks Every Disabled Parent Must Know

Confronting bedtime chaos head on when parenting with a disability. 5 helpful hacks to get you more in control and make for a calmer bedtime routine. Continue reading 5 Adaptable Bedtime Hacks Every Disabled Parent Must Know

Chronic Pain with Neuromuscular Disease

(Title Image incorporating black and white, side profile of me looking weary) Disclaimer: This blog post contains sensitive content some readers may find upsetting. I’m merely sharing my personal experience on this complex topic, therefore it should NOT be a substitute for seeking proper medical advice. Remember everyone and every circumstance is different.When you research Neuromuscular Disease (NMD) and pain, medical extracts will tell you that they don’t or shouldn’t cause pain. What they fail to mention is that they mean the disease itself isn’t painful, though the symptoms associated can very well be. Without the symptoms you can’t have … Continue reading Chronic Pain with Neuromuscular Disease