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Navigating Life & Motherhood with Muscular Dystrophy

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Category: Palliative Care

disability, Palliative Care, Uncategorized8 Comments

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Adjusting to NIV Around My Children

Mar 19, 2019Feb 7, 2020 Fi Anderson

*SENSITIVE CONTENT*

Learning to let my children see me using a ventilator on a daily basis, despite the heartbreaking worry of how they’d react. Would the machines I depend on to keep me with them longer, frighten them? And would even they still love me the same? Continue reading Adjusting to NIV Around My Children

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Life of an Ambitious Turtle

Life of an Ambitious Turtle

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Today let's not forget the significance of 22nd May 2017. The day young and old concert go-ers alike were buzzing to see the magnificent talents of @arianagrande at our M.E.N here in #Manchester, unaware of the evil laying await. 22 Ariana Grande fans never made it out alive that night. Families left heartbroken, a nation devastated. Manchester has never been the same again. Our thoughts are with all the families who lost their loved ones in this horrific terrorist attack today, the 3rd anniversary. 🐝 #22Angels #ManchesterAttack #OneLove #ManchesterBombing #terroristattack

We've been having a fair few family game nights during #Lockdown. Just when I was in the lead playing the age ole' classic #Monopoly, Olly decided to join in and take the role of the lucky #BlackCat banker! 😂💷 What's your favourite board game? #GameNight #PetLover #BlackCatClub #LuckyCharm #InstaFun

Children of #disabledparents aren't deprived, robbed of their childhood, automatically disadvantaged compared to their peers or destined to be #YoungCarers. Children of #disabled #parents are simply that! Sure parents like me face extra challenges but the truth is tackling damaging misconceptions is one of the biggest. - #BeKind 🌻 #FoodForThought #DontJudge #Parenthood #Disability #TuesdayThoughts #DailyParenting #MamaBlogger

With all the wrongs of the world at the moment, it's important more than ever to grasp the positives 🌞 My positive today is the ability to zoom around with my two whirlwinds who literally have my head on a swival from morning to night. Reflecting back on this time last year, isolated with a broken beyond repair powerchair. Isolated ironically then, as we again are now through shielding. Only now I'm giving back to help the charities in their darkest hour, as they helped me in mine. I couldn't see the light at the end of the tunnel this time last year, but I can now. How? Simply keep putting one foot in front of the other and you'll eventually get to where you're going. This too shall pass and we will all come out better people for what we learnt on our way. What is your positive today? #MondayThoughts #positivity #InThisTogether #DisabledMum #WheeliesAroundTheWorld #ParentingLife #JoyfulMamas #reflections #Blogger

I'm still beaming with pride for my two girlie's for how well they did in our #LockdownFundraiser Saturday. Considering it was scorching 🥵, some props didn't arrive in time and we had no family or friends physically stood at the sidelines cheering us on thanks to #UKLockdown #SocialDistancing rules, they powered through to the bitter end!! I've had a few people ask us where I got the #customised medals from. They're actually on @amazon and despite needing #engraved arrived within 3 days. They'll make lovely keepsakes of our #SportsDay fundraiser for MDUK. We all have the ability to do SOMETHING to help others during these uncertain times, charities are especially vulnerable right now and need our help more than ever. You can find the #medals by copying and pasting this link into your browser ⤵️ https://www.amazon.co.uk/dp/B083H27KF7/ref=cm_sw_r_tw_apa_i_UfoUEbSNAA1G6 #fundraising #Charity #Coronavirus #MondayMotivation #InThisTogether #CreativeLockdown

Want a chance to win this lush #RoseWjne and #LindtChocolate 🍷🍫 hamper? All you have to do is make a donation via our 'Family Sports Day via FB *LIVE* | @musculardystrophyuk #COV19 Relief @justgiving page by copying and pasting this link into your browser - https://www.justgiving.com/fundraising/familysportsdaymduk/ Alternatively, slide left to the next photo on this post for the unique QR code that'll take you directly to our #donation #fundraising page by taking a photo of the QR code with your smartphones camera. __________________ #EverydayCounts in the fight against muscle-wasting conditions. Your support is vital to keeping #MuscularDystrophy UK afloat through the pandemic so they can continue groundbreaking #research and supporting people living with over 60 forms of MD like myself! If you'd like to see our family in action today as we strive for a modest £300 target, you can find the link in my bio that'll direct you right to our Facebook event where we'll be LIVE at regular intervals throughout today doing traditional #SportsDay favourites with an #accessible twist 😉♿ like a #wheelchair - friendly obstacle course, the legendary #eggandspoon race and lots more... Thank you all for your support today! #giveaway #prizegiveaway #winprizes #fundraisingevent #LockdownUK #LockdownFundraiser #MusclesMatter #DoYourBit #InThisTogether #InstaActive #SportMotivation #SaturdayVibes

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