About Me


I am a 32 year old stay-at-home Mum of 2 little girlies living in Bolton, Greater Manchester UK and I live with a progressive life-limiting muscle wasting condition.
My children are my world and my primary focus is spending time and making everlasting memories as a family. I take way too many photos 📸 so they’ll never forget any of our little adventures together. Giving them a normal a childhood as possible given the unique circumstance of parenting with a disability. Life is what you make it and I intend on helping my girls realise the beauty of it. Every moment is precious and my hope is one adventure at a time they will embrace it as much as I do. Instilling good self-confidence as young girls as welll as teaching patience, compassion and lovealongg the way! #ParentingGoals ♥… 
I’ve been an active campaigner and disability activist from a young age. Working prominently as trustee and communications manager for a one-of-a-kind charity called Enabled2Parent – Supporting parents with disabilities and additional needs, balancing this with my other trustee role with the Pathfinders Neuromuscular Alliance who are a newly transitioned charity supporting and campaigning for adults with a wide range of neuromuscular conditions such as the one I was diagnosed with at the age of 3.
My journey began venturing into campaigning for better access for young disabled people in the Great Britain in 2011 when I became a Trailblazer, my work with them gave me the honour of being given the title of Transport Ambassador with Muscular Dystrophy UK. Participating in high profile awareness campaigns such as the #FitToBurst Changing Places Campaign – trying to implement the need for fully accessible toilets across the UK, the End of the Line report on better improving public transport and the Locked-Out campaign looking into the lack of accessible housing. To find out more of what I’m specifically involved in, jump over to the Campaigns & Projects tab at the top. 🔝 

If I’ve exhausted my littles by bedtime to where I have some ‘me time’ and I’ve caught up with current campaigns and project; I am an avid listener on Audible thanks to the brilliant work of famous authors Cathy Glass or Maggie Hartley novels on fostering, arts and crafts (this includes DIY World Book Day costumes for the littles!), listening to music way too loudly with earphones in and travelling to new places, grabbing life by the horns and am well known to spread myself very thin to get everything I can out of the opportunities I’m given to truly LIVE.

Thank you for being a much valued reader of my blog, I hope my posts help somebody, somewhere, educate people who are curious on matters raised or open hearts and minds… 👍 

Fi x

6 thoughts on “About Me

  1. I have really enjoyed reading about your experiences with your life and the section on PAs is so funny, I myself have had some very amusing and not so great issues with Assistants. I have a high level Spinal injury and live in Hindley . Although we have very different conditions I definitely see a huge crossover when it comes to certain issues. It's important that we share our stories and our lives in hope that we may help others feel they are not alone in their struggles and triumphs. Thank you for sharing my name is Lynsey mebeforemyself@yahoo.com😊


  2. Hi Fi

    We are expecting and my husband has MD type 3. He can use crutches in the house for limited time spans but is now predominantly a wheelchair user. 100% when out the house. I wondered if you would be willing to share some strategies to help him prepare to be as hands on as possible. He has limited arm and leg strength thanks Lou


    1. Hi Lou!

      Thanks for reaching out, always lovely to hear from other parents with disabilities. Of course, there are a lot of baby products out there that can help compensate for arm weakness. You may find this blog with suggestions helpful – https://lifeofanambitiousturtle.co.uk/2019/11/05/5-baby-must-haves/

      Doing things from his wheelchair is be easier and safer for him and baby so looking at the overall access of your home for him will be paramount! If your home isn’t very wheelchair-friendly, you can certainly place things in easier reach from a seated position e.g bottle prep area on a low table/worktop that is reachable, having a storage box/drawer on a lamp table in the front room packed with nappy changing supplies where he can sit on the couch and use a changing mat either on the coffee table on along next to him on the couch so there’s no getting out of Daddy helping with changes. For bathing baby, using an independent baby bath on the coffee table (towel underneath so it won’t slide) with him seated on the sofa would be good for being hands on, having a baby bath with the baby support built-in will help keep Daddy’s hands free for washing rather than supporting a slippery baby.

      Free feel to add me on social media or email me directly ambitiousturtle2428@hotmail.com as I’m happy to offer on-going support.

      Exciting times ahead! – Fi x


  3. **VERY random question**
    Any chance you used to use an AOL account in the name of SpeedyFee123? Saw an interview with you on the TV somewhere and had a vague recollection of chatting to someone with MD who went by ‘Fi’ (15 odd years ago). I went by Addz and was going through or had just gone through cancer treatment.. longshot that it was you but worth an ask 😛

    Liked by 1 person

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