I am a 32 year old stay-at-home Mum of 2 little girlies living in Bolton, Greater Manchester UK and I live with a progressive life-limiting muscle wasting condition.
My children are my world and my primary focus is spending time and making everlasting memories as a family. I take way too many photos 📸 so they’ll never forget any of our little adventures together. Giving them a normal a childhood as possible given the unique circumstance of parenting with a disability. Life is what you make it and I intend on helping my girls realise the beauty of it. Every moment is precious and my hope is one adventure at a time they will embrace it as much as I do. Instilling good self-confidence as young girls as welll as teaching patience, compassion and lovealongg the way! #ParentingGoals ♥…
I’ve been an active campaigner and disability activist from a young age. Working prominently as trustee and communications manager for a one-of-a-kind charity called Enabled2Parent – Supporting parents with disabilities and additional needs, balancing this with my other trustee role with the Pathfinders Neuromuscular Alliance who are a newly transitioned charity supporting and campaigning for adults with a wide range of neuromuscular conditions such as the one I was diagnosed with at the age of 3.
My journey began venturing into campaigning for better access for young disabled people in the Great Britain in 2011 when I became a Trailblazer, my work with them gave me the honour of being given the title of Transport Ambassador with Muscular Dystrophy UK. Participating in high profile awareness campaigns such as the #FitToBurst Changing Places Campaign – trying to implement the need for fully accessible toilets across the UK, the End of the Line report on better improving public transport and the Locked-Out campaign looking into the lack of accessible housing. To find out more of what I’m specifically involved in, jump over to the Campaigns & Projects tab at the top. 🔝
If I’ve exhausted my littles by bedtime to where I have some ‘me time’ and I’ve caught up with current campaigns and project; I am an avid listener on Audible thanks to the brilliant work of famous authors Cathy Glass or Maggie Hartley novels on fostering, arts and crafts (this includes DIY World Book Day costumes for the littles!), listening to music way too loudly with earphones in and travelling to new places, grabbing life by the horns and am well known to spread myself very thin to get everything I can out of the opportunities I’m given to truly LIVE.
Thank you for being a much valued reader of my blog, I hope my posts help somebody, somewhere, educate people who are curious on matters raised or open hearts and minds… 👍